Implant date: 1st Set 30th September 2005 2nd Set March 2012 Implant Surgeon: Mr A. Grobelaar Implant Manufacturer:1st Set:Poly Implant Prothesis (PIP) 2nd Set:Nagor Silicone or Saline: Both sets Silicone Textured Shell: 1st Set: No 2nd Set: No Duration implanted: 1st set - 6.5 years 2nd set - 4 years
FIRST SET PIP
Symptoms: Localised breast area symptoms from 6 months of having implants; sharp dull shooting pain under breast, intermittent itching under arm area. As time passed developed allergies to chemicals; latex, sulphites, penicillin. Mild anxiety, hormone issues. Intermittent pain down left arm, tingling sensations in left hand. Lump found in left breast December 2011.
Autoimmune Diagnosis: No When Capsular Contracture: No When Explant Date: March 2012 Explant Surgeon: Dr A Grobelaar of Harley Street. Fitted at Jersey General Hospital Recommend: No Full or part capsulectomy: Implants not in tact, impossible to do either. State of Implants: Severe rupture of both implants Histopathology results: Not tested Additional information: Implants removed and replaced under surgeon advice with Allergen (Nagor) Implants. I had poor health post surgery,developed a flu like illness – temperature, unwell 10 days, 2 weeks later had a grand mal brain seizure – hospitalized in HDU in/out of consciousness for a few days. Placed on ward. Recovery took months.
1 month post explant: Seriously unwell, unable to work, unable to communicate properly, sensory overload, cognition poor, slept hours a day. Dr Gibson – Neurological doctor – met with me after the seizure because cognitive abilities affected. Severe exhaustion, anxiety, placed on anti- depressant medication. Told stress and general rest would improve.
6 months post explant: Return to work full-time and to training regularly. I felt well. Then 1.5 years later. health began to decline. Fatigued, put of breath, as time passed stopped training completely eventually ight-flight response was heightened. Unable to regulate body temperature – excessive sweating, nervousness, trembling in body, pain in legs and throughout body. Noticeable breathlessness especially upon exertion, fatigue symptoms developed and affected every day living.
Had to leave contract at work being unable to perform daily tasks from extreme fatigue. Firstly, Diagnosed by GP – anaemia, then adrenal fatigue – advised see an Endocrine specialist – Dr Peter Bates, who concludes it is likely patient caught a virus after implants removed and this got into brain. Later, GP diagnosed (CFS) chronic fatigue syndrome (under investigation). Short-term incapacity was taken.
Pain and burning experienced in chest wall and under arm pits, visible lumps in chest wall and under armpits. Auto-immune like symptoms. Ultrasound scan requested by GP.
July/Aug 2015 – Ultrasound scan confirms PIP silicone has migrated into lymph glands and chest wall developing granulomas.
Mr Stephenson (Jersey General Hospital) advised there is nothing the General hospital can do. Decline request of MRI or biopsy on lymph. Follow up offered for another U.S in 1 year.
2015 ongoing – managed symptoms daily through use of diet, exercise and mindfulness meditation. Fatigue, dizziness, and aching in breasts/armpits and muscle weakness in arms/legs were a daily issue
SECOND SET – NAGOR
Symptoms: Fatigue, burning in chest, itching, muscle weakness, aching joints, brain fog, anxiety, breathlessness, hair loss, very dry skin, dehydrated, wanting to drink water all the time, stomach issues; gas, bloating. weight gain, fluid retention especially under arm pits, heat sensation in and under shoulder blades, unable to regulate body temperature, adrenal fatigue, night sweats, hangover feeling, CFS, ASIA.
Autoimmune Diagnosis: CFS - Chronic fatigue Syndrome – caused by autoimmunity When June: 2015 Auto-immune Diagnosis: ASIA - Autoimmune symptoms induced by adjuvants from SIIS, Silicone implant incompatibility syndrome. Blood Tests showed high levels of formaldehyde and dimethicone in my system causing decline in the function of mitochondria and glutathione. When: April 2016 Capsular Contracture: Yes When: July 2016 Explant Date: July 2016 Explant Surgeon: Dr Rita Kappel, Netherlands Full or part capsulectomy: 75% removal. Partial Capsulectomy – capsule up under rib. State of implants: Right - Calcified : Left – partly empty slow leak Histopathology results: Not tested Additional information: Dr Kappel tested cellular level inflammation 3 days post op healthy range is 3-4, over 10 is indicative of chronic disease. Mine was 16. Placed on anti-inflammatory diet.
1 Month post explant: The first few months after removed implants (capsule contracture and slow leak) relieved 70% of symptoms but because I had been exposed to PIP rupture from first set of implants and the brain seizure, I had leftover silicone. Further investigations lead to the diagnosis this year of ASIA from formaldehyde and dimethicone exposure (chemicals in implants) which affects mitochondria (energy) and glutathione (detox cells).
Despite explant there were lingering M.E (CFS) related symptoms. Later I found out through a naturopath the symptoms are related to candida in the body, which had occurred as a response to chemical toxicity, and two types of bacteria in gut (apparently would only of been picked up in a hospital environment) 1 affecting my lungs (breathless) which was one of very first symptoms. The other bacteria affected stomach (gas, pain, bloating). I also learnt that my body had been unable to absorb fats from food to shuttle the fat which feeds our energy cells (mitochondria) – chronic fatigue.
4.5 months post explant: I was already eating very clean but moved to a cleaner mycotoxin diet to support supplementation. I am over the moon to say over the past few weeks there has been a big improvement and change in the last symptoms and health overall – lots more energy, no brain fog (which is amazing) minimal anxiety (adrenals healing) and minimal pain in between shoulder blades. Today, symptoms are 5-10% with the odd day feeling fatigued.
5 months post explant: got diagnosed with hyperthyroidism.
6 months post explant:N/A